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Василиса родилась в январе 2015 года. Признаки заболевания начали проявляться в месяц после рождения. Начались всевозможные обследования, диагностики. В 6 месяцев ей выставили страшный диагноз Спинальная мышечная атрофия (СМА) 1 тип. Заболевание которое приводит к постепенному обездвиживанию ребенка. На тот момент лечения не было.
В конце 2016 года случилось чудо! На протяжении многих лет изучалась возможность излечения этого заболевания. И у ученых это получилось! В США одобрили первое в мире лекарство, которое помогает бороться с страшным заболеванием лекарственный препарат Spinraza (Nusinersen). В апреле 2017 года Спинразу одобрили в Европе!
До сих пор СМА было смертельным приговором.
Цена за 1 инъекцию космическая 125 000$, в первый год лечения необходимо 6 уколов в спинной мозг (750 000$), в последующие 3 укола в год. Загрузочная доза (4 укола ) остановит прогрессирование заболевания. Дети которые получают лечение овладевают новыми способностями, появляется глотательный рефлекс, держат голову, подымают ручки, ножки, могут самостоятельно сидеть, ходить. Это безусловно чудо!!!
Для того что бы остановить прогрессирование заболевания у Василисушки и добиться улучшений, нужно получить лечение данным препаратом.
На сегодняшний день это единственный одобренный препарат для лечение детей со СМА.
![Casablanca, Morocco. Casablanca (Moroccan Arabic pronunciation: [kɑzɑblɑnkɑ], also الدار البيضاء ed-dar el-Biḍa lit: White house) is the largest city of Morocco. It is located in western Morocco on the Atlantic Ocean. It is one of the largest and most important cities in Africa, both economically and demographically.
Casablanca is Morocco's chief port and industrial center. It is also the biggest city in the Maghreb. The 2004 census, adjusted with recent numbers, recorded a population of about 3.5 million in the prefecture of Casablanca and about 5 million in the region of Grand Casablanca. Casablanca is considered the economic and business center of Morocco, while the political capital city of Morocco is Rabat.
Casablanca hosts headquarters and main industrial facilities for the leading Moroccan and international companies based in Morocco. Industrial statistics show Casablanca retains its historical position as the main industrial zone of the country. The Port of Casablanca is one of the largest artificial ports in the world, and the largest port of North Africa. It is also the primary naval base for the Royal Moroccan Navy.
Etymology[edit]
The Latinized name of the city is a Portuguese word combination meaning White House (branca white, casa house). The modern Spanish version of the name came later. The city is now nicknamed Casa by many locals.
Legally speaking, Anfa is a prefecture (a district) with half a million city inhabitants, and thus is part of Grand Casablanca region. Anfa is generally considered as the original city or old city of Casablanca.
History[edit]
Main article: History of Casablanca
Early history[edit]
The area which is today Casablanca was founded and settled by Berbers by at least the 7th century BC. It was used as a port by the Phoenicians and later the Romans. In his book Wasf Afriquia, Al-Hassan al-Wazzan refers to ancient Casablanca as Anfa, a great city which was founded by the Berber kingdom of Barghawata in 744 AD. He believed Casablanca to have been the most prosperous city on the Atlantic coast because of its fertile land. The independent Berber kingdom of Barghawata in the area arose around 744 AD, and continued until it was conquered by the Almoravids in 1068.
Middle Ages to French conquest[edit]
Casablanca in 1572, when it was still called Anfa
During the 14th century, under the Merinids, Anfa rose in importance as a port. The last of the Merinids was ousted by a popular revolt in 1465. In the early 15th century, the town became an independent state once again, and emerged as a safe harbour for pirates and privateers, leading to it being targeted by the Portuguese, who destroyed the town in 1468. The Portuguese used the ruins of Anfa to build a military fortress in 1515. The town that grew up around it was called Casa Branca, meaning white house in Portuguese.
Between 1580 and 1640 the Crown of Portugal and the Crown of Spain were held by the same kings and therefore Casablanca and all other areas occupied by the Portuguese were under Spanish control, even though maintaining an autonomous Portuguese administration. As Portugal broke ties with the Spanish king in 1640, Casablanca came under fully Portuguese control once again. The Europeans eventually abandoned the area completely in 1755 following an earthquake which destroyed most of the town.
The town was finally reconstructed by Sultan Mohammed ben Abdallah (1756–1790), the grandson of Moulay Ismail and ally of George Washington with the help of Spaniards from the nearby emporium. The town was called الدار البيضاء ad-Dār al-Bayḍāʼ, the Arabic translation of the Sp](https://sun1-54.userapi.com/s/v1/if2/-gVKpRY_JMHgfNyKu1C-NxgLjk25BCB0-8h4iiiQsANV72dQTmqoFkHbCSgcjs2A3hhlBW33xm2oDTR8Mu7klecz.jpg?quality=96&crop=151,0,460,460&as=32x32,48x48,72x72,108x108,160x160,240x240,360x360&ava=1&cs=480x480 "Casablanca, Morocco. Casablanca (Moroccan Arabic pronunciation: [kɑzɑblɑnkɑ], also الدار البيضاء ed-dar el-Biḍa lit: White house) is the largest city of Morocco. It is located in western Morocco on the Atlantic Ocean. It is one of the largest and most important cities in Africa, both economically and demographically.
Casablanca is Morocco's chief port and industrial center. It is also the biggest city in the Maghreb. The 2004 census, adjusted with recent numbers, recorded a population of about 3.5 million in the prefecture of Casablanca and about 5 million in the region of Grand Casablanca. Casablanca is considered the economic and business center of Morocco, while the political capital city of Morocco is Rabat.
Casablanca hosts headquarters and main industrial facilities for the leading Moroccan and international companies based in Morocco. Industrial statistics show Casablanca retains its historical position as the main industrial zone of the country. The Port of Casablanca is one of the largest artificial ports in the world, and the largest port of North Africa. It is also the primary naval base for the Royal Moroccan Navy.
Etymology[edit]
The Latinized name of the city is a Portuguese word combination meaning White House (branca white, casa house). The modern Spanish version of the name came later. The city is now nicknamed Casa by many locals.
Legally speaking, Anfa is a prefecture (a district) with half a million city inhabitants, and thus is part of Grand Casablanca region. Anfa is generally considered as the original city or old city of Casablanca.
History[edit]
Main article: History of Casablanca
Early history[edit]
The area which is today Casablanca was founded and settled by Berbers by at least the 7th century BC. It was used as a port by the Phoenicians and later the Romans. In his book Wasf Afriquia, Al-Hassan al-Wazzan refers to ancient Casablanca as Anfa, a great city which was founded by the Berber kingdom of Barghawata in 744 AD. He believed Casablanca to have been the most prosperous city on the Atlantic coast because of its fertile land. The independent Berber kingdom of Barghawata in the area arose around 744 AD, and continued until it was conquered by the Almoravids in 1068.
Middle Ages to French conquest[edit]
Casablanca in 1572, when it was still called Anfa
During the 14th century, under the Merinids, Anfa rose in importance as a port. The last of the Merinids was ousted by a popular revolt in 1465. In the early 15th century, the town became an independent state once again, and emerged as a safe harbour for pirates and privateers, leading to it being targeted by the Portuguese, who destroyed the town in 1468. The Portuguese used the ruins of Anfa to build a military fortress in 1515. The town that grew up around it was called Casa Branca, meaning white house in Portuguese.
Between 1580 and 1640 the Crown of Portugal and the Crown of Spain were held by the same kings and therefore Casablanca and all other areas occupied by the Portuguese were under Spanish control, even though maintaining an autonomous Portuguese administration. As Portugal broke ties with the Spanish king in 1640, Casablanca came under fully Portuguese control once again. The Europeans eventually abandoned the area completely in 1755 following an earthquake which destroyed most of the town.
The town was finally reconstructed by Sultan Mohammed ben Abdallah (1756–1790), the grandson of Moulay Ismail and ally of George Washington with the help of Spaniards from the nearby emporium. The town was called الدار البيضاء ad-Dār al-Bayḍāʼ, the Arabic translation of the Sp")
